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    March 12

    Going Turquoiseish for March

    Nearly half way over but thought I'd put some effort into CDH Awareness.  I've been a little lame this year; after our big start (billboard, radio, newspaper, magazine, and finally full-feature magazine article), I've done just about nothing this year to educate anyone on Audrey's birth defect.  Sure I've shared her story to a handful of people who didn't know it, but nothing else.  Haven't signed up for the March of Dimes walk again either.  I'm not sure what my deal is.  What I do know though is that 3 years ago on this day, the first 2 boys I "knew" with the defect were here and fighting, Jackson was a week old, and Drew was 4 days old.  5 days later sweet Avery would arrive and a month after that, came SofiaAudrey was last but somewhere in there we "met" Jessica too and her darling Parker would come just 3 days after Audrey.  Six women brought together by this crazy defect.  We emailed, blogged, called, stood by each other through cyberspace and now, 3 years later only 3 babies are here.  I miss Drew, Avery, and Parker.  I'm sad we didn't beat the odds, our six were supposed to be the ones.  Babies keep dying from Congenital Diaphragmatic Hernia.  You can read about them over and over and over, it sucks.  I wish I had direction on what I’m supposed to do, I just haven’t felt called to anything specific.  Some of my friends are doing great things, I’ll continue to support them.  To all the amazing people I’ve met in the CDH world, thanks for all you’ve given us during our journey.  To all the parents of babies lost to this defect, my heart aches for you.  I promise they will never be forgotten.   Hopefully someday CDH will be a defect of the past.

    For now, here’s my favorite CDH Warrior…

    IMG_2204   You've come a long way, baby! 

    March 09

    Getting ready for Spring Break!

    I’ll explain the color change later, too deep to write right now.  New pictures, funny stuff as always at the Miller house.  Not much of interest to share…Ethan’s huge project got finished and poor kiddo missed one point because he didn’t bring his main resource book in with the project (as it clearly stated on the project sheet).  OOPS!  “Ethan, I’m taking it back to the library, you won’t need it”  “Mom, I think I do”  “You don’t, don’t worry about it”             I’m such a stellar mom!

    Jason has traded Superman for Princess garb.  Today was the first day and I think it had more to do with me not helping with costuming more than choice.  He can get both he and AJ dressed in the Princess outfits but requires help with everything else.  I said they could play dress up while I folded laundry but then we were going to Wal-Mart. They wanted to go dressed up!  I can’t wait for daddy to see the pictures! 

    We’re headed to San Antonio and Austin for Spring Break. Nate has traded OKC for Austin and we haven’t been to SA since Thanksgiving.  The kids ask everyday how much longer until they get to go to Grandma and Papa’s, please Friday, get here!  It’s only Monday, right? Help!